Heidi has been asked dozens of times if she would have naturally been left-handed. Who knows? There aren't many instances of left-handedness in her family.
Early on, she showed artistic talent.
Her aunt Pam recalls, "The first pictures that went up on the refrigerator were definitely not your typical little stick figures."
Her dad agreed.
"By the time she was in high school, without any training at all, she could do pencil drawings of people that looked just like them," he said.
Heidi went to West Virginia State University, where she majored in art and specialized in ceramics and printmaking. There, she met the guy she eventually married, Shane Evans.
He was a couple of years ahead of her and said they were acquaintances at first, the kind who say hi in the art rooms.
Shane can't recall when he noticed Heidi's arm, and now he says he often forgets all about it.
"She'll ask, 'Honey, can you help me open this jar?' And I'll make some joke about women always needing help opening jars. And then she'll throw up her arm and I'll be like, 'Oh.'"
Heidi said she never really thought about having children.
Then in a short space of time her mom died, her best friend got pregnant and she turned 25, "and my uterus went wow, pow!"
When she and Shane married, the topic was much discussed, not because of any issues or concerns with birth defects, but merely on the philosophy of having versus not having kids.
The couple agreed they would have one child and Heidi conceived immediately. They considered genetic testing, but it was expensive.
Heidi then recalls thinking, "If I'm worried my child will be born like me, what does that say about me? If I had found out she was like me, I would not have terminated, anyway."
As it turned out, an ultrasound showed a perfect baby girl with 10 fingers and 10 toes.
"We knew her name before she was born," Heidi said. Molly, now 6, is named after a beloved WVSU art instructor, Molly Erlandson.
Molly Evans is creative. She loves stories and role-playing.
"We both love Harry Potter," her mom said.
Heidi has always rejected being labeled "disabled." Recently, she has accepted it into her vocabulary though it has nothing to do with her right arm. Rather, her back pain has become so debilitating she has struggled to be able to work as a graphic designer.
She doesn't want to become dependent on pain medications, but some days they are the only thing helping her get out of bed. In two weeks, she will undergo a new procedure that she and her family hope will manage the pain.
She is both hopeful and worried.
"I don't want to be a junkie," she said.
Heidi is known for her sense of humor. She's irreverent and a bit outrageous - her hair color has gone from blue to red to blonde in the last year. She loves tattoos.
"Everybody loves her," her dad said. "She doesn't act like she grew up with a chip on her shoulder."
Yet Heidi admits the back pain at times has been defeating.
The recent revelation about her genetic disposition has affected that. The doctor who put a name to it has since left the clinic and moved out of state, but his effect on Heidi's life has been profound.
In her piece for bandback
together.com, she wrote, "I am lucky - privileged, able-bodied. It's relative, and it's fascinating. I'm so grateful that I don't have quite the right words. I'm so happy to have this information, this key.
"This shift in my self-image was never anticipated. I feel stronger in mind and soul and a greater peace with my body. The diagnosis itself isn't as important as just the having of one. I feel I know myself more deeply now that I can name this state of being.
"It's about that, I suppose; it's about having the words to frame it. That was the hunt: for precedent and a concise term. It's how I learn and understand. My words, my body, my self-awareness is more complete now.
"I'm the 'strange beautiful daughter' from my Ganesha tattoo. I'm a grateful, gorgeous, graceful child of chance, changes and a life turning from one point.
"8p21.1 and I spin out around it, all my knowledge and choices, steps and thoughts and art shaped by this unique variation."
Heidi blogs at http://www.daisybones.com/.
Contact writer Monica Orosz at mon...@dailymail.com or 304-348-4830.